Resources & Community Support
The Silly Lily Foundation provides families with the guidance, tools, and support they need to navigate any medical device, chronic diagnosis, or complex health challenge. From connecting families with knowledgeable doctors and advocates to offering practical resources for school, home, and hospital life, we strive to make the journey a little easier and less isolating.
We are more than a foundation – we are a community that listens, uplifts, and stands alongside every warrior and their loved ones.
Other Resource Links
Find Care
Specialists & Clinics
- Pradeep Chopra – Center for Complex Conditions
- Marguerite Garofalo – Hydrangea Family Medicine
- Fran Carrol – RI Vitality Center
- Neuro Visual Center of New York
- Paolo Bolognese – Chiari EDS Center
Shop & Support
Medical ID & Safety
- Lauren’s Hope
Support & Stabilization
- Body Braid
- Supacore (POTS-friendly compression)
Adaptive Clothing
- Vertige Adaptive
- Spoonie Threads
- Springrose
Footwear
- Kizik (easy slip-on shoes)
Home & Environment
- AirDoctor
Adaptive Beauty Tools
- By Storm Beauty
Additional Helpful Products
- Daily living aids and supportive tools:
- Jar opener: https://a.co/d/01bIMcvK
- Nausea Aromatherapy Stick: https://a.co/d/08ofuldg
Educational & Support Books
Chronic Illness & Complex Conditions
- Disjointed
- The Trifecta Passport
- New Paradigms in Lyme Disease Treatment
- Living Life to the Fullest with Ehlers-Danlos Syndrome